Our Family’s Recent Journey

Posted on January 25, 2011 by Buddy Champion

Since Christmas Night, our youngest daughter Grace had not been sleeping well, blurred vision, shaky, off -balance. An appointment with our Pediatrician, January 5, sent us from there to Children’s Hospital for tests.  After a huge battery of tests, we left with the diagnosis of “inflammation of the cerebellum”, given steroids for 2 weeks and, aside from a few weeks of missed school, a prognosis of full recovery.  

Thursday, January 13, we were readmitted to Children’s because her balance and coordination were worsening. We were there until Friday, January 21.  During this weeklong stay, doctors remained “intrigued” with her symptoms and ran her through many, many more test and evaluations trying to find the answer. So far, all test and examinations showed no initial, significant findings.  Grace continued through physical therapy and began to manage the use of a walker for support.

Grace also began a three day treatment called “IVIG” which is intravenous immune globulin. Thankfully Grace had no adverse reactions to the this treatment.

We are at home now, giving the IVIG treatment time to work (which could be weeks). Her situation is still “intriguing” to neurologists with still no firm diagnosis. Our neurologists are in touch with others around the country thanks to technology allowing shared tests results, MRI, and video

We have been blessed with an abundance of support, a wonderful hospital and staff, constant prayer for healing from so many, a sweet, positive attitude from Grace (which is typical,) and peace that only God brings. Please continue to pray for wisdom and divine healing!