Recent TweetsGrace is a definite step better since my last post. Yesterday, she was taking some steps on her own, and today, more independent steps with better balance. We are excited that her body is responding to the IVIG treatment! God is our Healer, and we are thankful for the healing we see in Grace.
As a result of this, Grace is wanting to wear heels and asking when she can drive. “We’re not there, yet,” I said.
so, Happy Monday!
Lynn
Praise God from Whom all blessings flow…
Today Grace had a “movement disorder study,” where they shocked her a bit (not much, ’bout like an electric fence, said the doctor :-/ ), then an “EEG” where they glued 20 electrodes to her head. Yes, of course I took pictures of this.
Met with Dr. Pittock for a bit for summary and treatment recommendation. Dr. Pittock confirmed previous findings that this is an auto-immune disorder with cause unknown, and suggested an aggressive treatment of IVIG over the next 12 weeks for starters, as neurologists at Mayo and Children’s continue to work together. Her response to the 12 week treatment will determine the next step.
We are ready to be home, as no one even understands “unsweet tea” here.
Point of clarification: Nurse “Luke” was not dressed in Star Wars garb, but we recognized him just the same, especially with the force so evident. 🙂
So, again, we thank you for your prayers, your posts, your constant encouragement. We are grateful for the opportunity to come to Mayo Clinic, praying that God will use this place to bless and heal many.
Headed home tomorrow, Lynn
“Show me Your ways, O Lord, teach me Your path; guide me in Your turth and teach me, for You are God my Savior, and my hope is in You all day long.” Psalm 25:5 -6
Hi friends.
Today Grace has been video-ed, x-rayed, examined and stuck. Dr. Keegan ordered a few different tests that haven’t been done previously.
Yesterday, Luke Skywalker, or his twin, put in Grace’s iv for the MRI. The force must have been strong with him, as Grace gave a “10” for “ability to put in an iv well.” She has never given anyone above a 6 before.
Good news from yesterday’s MRI: previous MRI’s have been abnormal, but yesterday’s was basically normal. This means that “radiologically,” Grace is better, but “clinically,” not better yet.
Dr. Keegan and Dr. Pittock will make recommendations on next treatment for Grace after (most of) the results of tests are in.
Thank you for praying with us for Grace’s complete healing. We thank God for the healing we’ve seen.
Vials-of-blood-drawn count = 54.
People making positive comments on Grace’s shoes: 5
🙂 Lynn
“I have come that they may have life, and have it to the full.” John 10:10
Hope you all have enjoyed a beautiful week! Life at the Champion house has been fair to partly cloudy, as Grace finished a round of steroids Tuesday. Who invented this evil drug? We have been encouraged by small steps of improvement in Grace. Her balance seems better.
We will talk with Dr. Ness this week about the next step. Please pray that she will be smart as she treats Grace.
Heaven is surely overrun with prayers for our girl; we thank you.
🙂 Lynn
“Pray without ceasing.”
